Ed is in Wed 18 August 2010: AlgoaFM

Listen to today’s interview with Lance du Plessis on AlgoaFM: Caregiving 

Read

Finding meaning with Charles: Caregiving with Love Through a Degenerative Disease  by Janet Edmunson

Go to her website for more information regarding caregiving:

www.janetedmunson.com

Some possible interesting South African statistics based on extrapolation from USA figures:

  • 600 000 people have some kind of degenerative neurological condition
  • 150 000 people have Parkinson’s Disease (PD)
  • 450 000 people have Alzheimer’s Disease (AD)
  • 40 000 people have Multiple Sclerosis (MS)
  • 3 000 people have Amyotrophic Lateral Sclerosis (ALS) – also known as Lou Gehric Disease 
  • 2 000 people have Progressive Supranucleur Palsy (PSP)
  • 1 person has Corticalbasal Degeneration (CBD)

Support in Port Elizabeth:

  • Parkinson’s Support group – phone Deline 041 373 7904 or Briar 041 583 6180
  • St Francis Hospice 041 360 7070
  • Alzheimer’s East Cape – phone Prof Juanita Strumpher 082 378 9062 or Matron Linda Swartz 082 785 5574
  • Support Group of Diabetes SA – phone Martin Prinsloo 082 579 9059
  • NursingWise cc is a nursing agency that provides care workers, enrolled nurses, sisters, etc. – phone 041 373 3100

Some advice for Family Caregivers:

  • Accept offers of help – don’t wait too long to get help
  • Give yourself a break
  • Watch your own health
  • Review your family’s health care coverage (medical aid/disability cover)
  • Seek expert advice
  • Stress makes you stupid
  • Surround yourself with positive people and messages
  • Strength comes in helping others
  • It is difficult dealing with the very long good-bye that is part of a neurodegenerative disease
  • Be more upfront and proactive with issues such as wheelchairs, driving, retirement 
  • Life isn’t fair – but tragic opportunities allow one to live more deeply and more passionately
  • Be an A C E : Live Abundantly – Laugh Continuously – Love Endlessly

To succeed in Life, you need a Wishbone, a Backbone and a Funnybone