Ed is in Wed 18 August 2010: AlgoaFM


Listen to today’s interview with Lance du Plessis on AlgoaFM: Caregiving 

Read

Finding meaning with Charles: Caregiving with Love Through a Degenerative Disease  by Janet Edmunson

Go to her website for more information regarding caregiving:

www.janetedmunson.com

Some possible interesting South African statistics based on extrapolation from USA figures:

  • 600 000 people have some kind of degenerative neurological condition
  • 150 000 people have Parkinson’s Disease (PD)
  • 450 000 people have Alzheimer’s Disease (AD)
  • 40 000 people have Multiple Sclerosis (MS)
  • 3 000 people have Amyotrophic Lateral Sclerosis (ALS) – also known as Lou Gehric Disease 
  • 2 000 people have Progressive Supranucleur Palsy (PSP)
  • 1 person has Corticalbasal Degeneration (CBD)

Support in Port Elizabeth:

  • Parkinson’s Support group – phone Deline 041 373 7904 or Briar 041 583 6180
  • St Francis Hospice 041 360 7070
  • Alzheimer’s East Cape – phone Prof Juanita Strumpher 082 378 9062 or Matron Linda Swartz 082 785 5574
  • Support Group of Diabetes SA – phone Martin Prinsloo 082 579 9059
  • NursingWise cc is a nursing agency that provides care workers, enrolled nurses, sisters, etc. – phone 041 373 3100

Some advice for Family Caregivers:

  • Accept offers of help – don’t wait too long to get help
  • Give yourself a break
  • Watch your own health
  • Review your family’s health care coverage (medical aid/disability cover)
  • Seek expert advice
  • Stress makes you stupid
  • Surround yourself with positive people and messages
  • Strength comes in helping others
  • It is difficult dealing with the very long good-bye that is part of a neurodegenerative disease
  • Be more upfront and proactive with issues such as wheelchairs, driving, retirement 
  • Life isn’t fair – but tragic opportunities allow one to live more deeply and more passionately
  • Be an A C E : Live Abundantly – Laugh Continuously – Love Endlessly

To succeed in Life, you need a Wishbone, a Backbone and a Funnybone

One comment on “Ed is in Wed 18 August 2010: AlgoaFM

  1. CAREGIVING: I did my Caregiving training at the Health Care Academy at Pier 14 telephone 041-4870473 in Port Elizabeth June 2006. I also did my practical training at the Frail Care Centre at Lapa Munnik.

    Once training is completed the Academy tries to find employment for the trainee’s.

    There is also the Nightingale Training Centre but I dont have contact info for them.

    I was 50 at the time and training was difficult because it was hard physical work and 12 hour shifts and all the other students were young and being the only white person there didn’t help. It all paid off when at the end of my training I was awarded Student Of The Year award.
    Lappa Munnik offered me a position but because the pay was so little and I live so far away I had to decline. I actually tried to find sleepout work and you wont believe how difficult it was and I was charging housemaids fees. Eventually I developed shoulder problems and after the operation I stopped looking for work. It was hard because I was so passionate about the work.
    If there is anyone who requires the services of a active 56 year old caregiver I am available weekdays as I work weekends.
    The physical work would have to be light/medium. Renumeration would be negotiable.

    Regards

    Denise dlh@telkomsa.net

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