Joost’s Disease


©2012 Edward C. Lunnon

Tuesday 11 December 2012: 6 years 3 months on …

Physical:  Advantage CBD / Mental:  Advantage CBD

Joost van der Westhuizen, ex-Springbok scrumhalf and captain, appeared on the TV programme Carte Blanche again this past Sunday. He has MND – Motor neurone Disease and has appeared on TV a few times and often in the print media since his diagnosis at the beginning of last year.

In the United States MND is often called Lou Gehric’s disease – after a famous baseball player who contracted the disease. In South Africa now, people often refer to Joost’s Disease! I repeatedly get asked whether I have what Joost has!

Thank God for Joost!

Because of his celebrity status he has helped to raise the status and awareness of MND and other neurological illnesses.

But his situation should also raise a number of other issues and many questions.

For every Joost out there, there are hundreds of other South Africans with similar neurological illnesses who not only battle the disease but also need the support system and funds to deal with their battle.

How best can we help those people?

By law, medical aids in this country have to cover certain illnesses. These are referred to as PMB’s – prescribed minimum benefits. A certain number of diseases/conditions (such as cancer, HIV/AIDS, TB etc.) are defined as PMB’s and have to be covered for certain treatment by a medical aid.

Neurological illnesses (other than Parkinson ’s disease) are not classified as PMB’s which means that all treatment required for such illnesses, such as medication, physiotherapy, speech therapy, wheelchairs and other devices, home care, adaptation of homes, etc are not covered by medical aid other than payments made out of a general medical savings account should there be an available balance. This places an unbelievable financial burden on the patient and family.

How best can we be lobbying for the lawmakers to include neurological illnesses as PMB’s?

Joost has a foundation, J9, which is raising funds for research.

Where is this research being carried out and what research is being done?

How best can we be assisting in order to make this research beneficial to all patients?

How best can we be lobbying government to assist in assisting people with neurological problems?

Joostlike! The questions don’t stop … and the answers don’t come!

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