Oh Flower of Scotland

Six years ago, in November 2008, I was in Cumbria, England and wrote a note to say farewell to Pat Clarke on his retirement from Grey Junior. It was read to Pat by Principal of Grey Junior School Lindsay Pearson.

Read that note here: http://www.edlunnon.wordpress.com/2010/11/19/on-pat-clarkes-retirement-2008/

It was also at that time that I had the privilege of watching South Africa’s Springboks play rugby against Scotland at Murrayfield in Edinburgh.

Listen here to that wonderful anthem which will be sung at Port Elizabeth’s Nelson Mandela Stadium when the Boks play Scotland this coming Saturday:

20140626-232220-84140642.jpg

Global MND / ALS Day: 21 June 2014

20140621-101447-36887613.jpg

Today is the middle of winter in the Southern Hemisphere – the middle of summer in the north!

All over the world, however, it is an awareness day for Motor Neurone Disease ( MND – also known as ALS, and in the USA as Lou Gehrigs Disease and in RSA as Joost’s Disease).

My illness, CBD ( corticalbasal degeneration), is not MND. However, it is also a degenerative brain disease with many similar symptoms. What our neurological diseases have in common is that no-one knows the cause of the diseases, there is NO healing treatment, nothing to slow it down or reverse it and NO cure.

Besides theses commonalities, we also share the ongoing problem of financing our ever-increasing medical costs. In South Africa, neurological illnesses ( other than Parkinson’s Disease and MS) are not recognized in law as a PMB – prescribed minimum benefit illness – and are, therefore not funded by medical aids!

Please remember all of us today, and our families and our carers.

So, whilst asking for you to stop and become aware of our affliction today, also be aware of the fragmentation of various groups that have been established to assist with awareness and fundraising. In our city alone, I am aware of some five different organizations (maybe more) all competing for your attention and, more importantly, for your funds!

Ensure that your funds are being utilized in the area that you wish. Ask questions and demand answers!

Thank you for caring for us today and every day, and for assisting to fund our unasked for challenging ride through what is left of our cut-short lives.

God bless us all!

Bedtime

Methinks I’m staying in bed today – only because I’m ill and I can and I may and it’s raining and it’s 7 degrees and it’s cold.

Just no nurses in this hospital!

20140619-081024-29424620.jpg

The Week the Wheels Come Off

7 years 9 months ill …

Physical: Advantage ED / Mental: Advantage ED

 

I Remember …

… Wacky Wednesday: I fetched Steve and Andre Fourie (Mr PE 2014) for the radio show at AlgoaFM. Then coffee at Bluewaters cafe, home and off to my weekly massage for an hour. Home at 2pm,and off to Aurora Hospital for hydrotherapy until four pm. Snooze for a while until supper. Freezing cold – I think its hovering around 7 degreees! – so off to bed and some reading and trying to get lift to Patensie.

 

… Wheels come off! Lift to Patensie with Niekerk Ferriera originally at 2pm but only at 4pm. Arrive at Lande Ferriera’s home, get ready for piano concert by Rocco deVillers at her home with an audience of almost 150 guests. Cheese and wine and music and conversation that continued until 4am!

 

…  Spent Friday doing admin on her stoep, rest into PE for the day. Walked, talked, visited until Pera arrived at 5pm. Pizzas for supper and early to bed!

 

… Off to Gamtoos Sitrus Fees for the day and celebrated with festinos

 

… Snoek and Steak Braai in the evening

 

… Father’s Day: Left Patensie at midday for Plett – joined up with Sean at the Bryants! Another afternoon and evening of “kuiering”!

 

… Youth Day (Monday): Breakfast at home; coffees at Beacon Island; lunch at The Deck and then back to PE in the evening.

 

… Tuesday: Visit from Sr Gill; haircut; visit to Niekerk and Pietie Ferreira at St George’s Hospital; Looking for lift to bring my pills back from Patensie!

20140617-210119-75679957.jpg

Youth (Soweto) Day

I remember 16 June 1976 – 38 years ago. I was a first year student in Stellenbosch. The country was in a fiery uproar. The black scholars in Soweto wanted better education.

My mother fetched me with a pistol on her car seat.

The burning question remains … Is the education any better now than it was then?

Cry the beloved country!

On AlgoaFM with Mr PE

MrPE

 

Lance du Plessis, Mr PE 2014 Andre Fourie, Ed Lunnon, Steve Fourie

 

Steve and I met in Stellenbosch in 1976. We lived in Helshoogte Residence.

When I moved to PE, I boarded with his folks, Andre and Rene Fourie, at 72 6th Avenue Walmer – my first address in PE!

Steve’s sons and our sons were at Grey together.

I was diagnosed with CBD in Feb 2007 – Steve was diagnosed shortly thereafter with MS.

Now Andre (Jnr) is Mr PE 2014.

Yesterday they were on ED is in wED.