7 years 11 months ill with a degenerative neurological illness CBD …
Last night, Mother Nature emptied her buckets of ice and snow and water over Port Elizabeth and the Eastern Cape, answering the call to the Ice bucket challenge.
So now, this morning, part 2 of the challenge remains. To whom or what should a donation be made?
The question, of course, is “Why would you want to donate anything?”
Is it because you want to be philanthropic and donate money towards research to eradicate these scourge diseases?
I am yet to be informed that there is any recognized brain research being done in South Africa. Until that happens, I am of the opinion that NO research is being conducted. So why give your money to nobody?
Is it because you want to make my life and that of my fellow twenty-odd ill compatriots a little easier?
So who cares for us? Who makes our lives easier and more comfortable?
Who provides us with the arms and legs and lungs and tongue that we lose?
Who provides the hugs, the care, the love, the psychological assistance, the 24 hour assistance, the medication, the physio- and speech therapy, the crutches, the wheel chairs, the breathing apparatus and all the other apparatus that we need to enable us to live a somewhat dignified life – a life that we, as healthy people, take so,for granted?
In the first instance, we are dependent on our families.
In the second instance, they depend on organizations such as the Hospice Organisation (the St Francis Hospice of Port Elizabeth, in particular) and the Motor Neurone Disease Association of South Africa.
These organizations, who do sterling work, are dependent on public ( that’s your!) assistance.
We thank you for caring and sharing.