ED is in wED (finale) – 29 April 2015

(c) 2015 Edward C Lunnon

8 years 8 months ill …

Physical: Advantage CBD / Mental: Advantage Ed

  

It was the worst of times. It was the best of times.

It was round about March of 2010. I had been ill for 3 years.

Lance and I met at the Mugg and Bean at Greenacres and discussed the possibility of  doing a radio interview regarding my illness. I had been told that in 2010, three years into my illness, I could expect to become severely incapacitated and that, in all probability, I would die within the next two years.

So, we had our first interview on Wednesday 31 March 2010. The rest, so they say, is history.

Fast forward the clock. 260 interviews later.

I am not yet dead – nor am I severely incapacitated.

Algoa Country, the broadcast area, has got bigger to include the southern Cape and places like Plettenberg Bay,Knysna, George and Mossel  Bay. Together with the Border, the Eastern Cape, the Karoo … the listeners have increased across the country, on the air and online. The number of readers of my blogsite, which I commenced at the same time as our interviews, has increased from zero to just short of 200 000 hits.

I have in a small way been able to raise awareness about my illness, in particular,but in general about living life with whatever the hand is that is dealt to one. ED is in humblED by the reaction of the public and the support and assistance that he has received over these years. 

ED is in wED, yes, for one last time this coming week, but ED is also in blessED.

I am thankful and grateful to Lance du Plessis who believed in me from that first meeting, and who  has supported me and kept me talking behind that microphone during these last five years.

Thank you to AlgoaFM for allowing me those ten minutes every week. Judging by the response that I have received over the years, you cannot imagine how many lives have been touched across Algoa Country.

To the AlgoaFM colleagues who have met me in the passage, chatted to me and encouraged me, thank you for your support and encouragement. I shall miss you all. To Tove, Briony and KayCee, who have also at times interviewed me, thank you for your time and encouragement, too. Daphne, at the front door, always with a smile and a good word –  I shall miss that friendliness ever Wednesday morning!

Yes, it will be quite a change when from next week, I will wake up on a Wednesday and not have to think about the radio or the listeners. As my niece and nephew, Sebastian and Michelle, refer to me, the “radio man” is in retirED!

Thank you to all of you who have listened to me talking to you from the studio, my bed, London, Dublin, Phuket’s massage beds and the length and breadth of our beautiful country. It was only on one occassion, in the Western Cape’s Cederberg, that we were totally prevented from having our talk due to lack of reception!

You, the listeners, have listened in our homes, your offices, your cars, your favourite picnic stops, your forecourts, wherever … thank you for listening!

Thank you for listening, for sharing, and for caring!

We have seen and experienced and discussed numerous events over the last five years. We have seen the best of times and the worst of times. We have seen the best in people and the worst in people.

May I continue to encourage you to  Live Life each and every day. I invite you to continue accompanying me on my journey, however long or short that may still be, by reading my blogs on this site, http://www.edlunnon.wordpress.com or http://www.edlunnon.co.za.

I thank you for allowing me into your homes and into your lives.

Nkosi Sikelel’ iAfrika!

Seeds of Encouragement (ED is in wEDnesday 22 April 2015)

IMG-20140902-WA004

“If we’re going to bring out the best in people, we, too, need to sow seeds of encouragement.”― Joel Osteen

The right word said at the right time can inspire or encourage someone. The perfect words can provide hope or just give someone a boost when their energy is flagging.

For all walks of life, here are a few words of encouragement for the person in your life who can use it. Maybe it’s you.

1. To make the first step toward change, you must begin – To paraphrase the Lao-tzu quote: the journey of a thousand miles starts with one step. To finish successfully, you have to get started. There is no time like the present.

2. Let go of the bad and focus on the good – Positive energy and a positive attitude will get you a lot further. Let go of what you can’t change and, instead, look to what you can change. Choose to dwell on things that are going well.

3. “Peace comes from within; don’t seek it without,” Buddha – This wise quote makes great advice. Material possessions, external circumstances, other people’s behavior–nothing will make you happy from the outside. Happiness starts with your own heart and soul.

4. Without the struggle, there is no strength – You can’t build strength without a little heavy lifting. Storms and tribulations will come; but you will out the other side stronger and better than ever.

5. Wake up and chase your dreams – Nothing can hold you back! You are who you want to be and you can do whatever you want to do. Make the decision to take one step toward a goal of yours today.

6. Don’t lose a diamond while chasing glitter – The biggest, brightest opportunities of life sometimes pass us by while we’re busy chasing temporary, less wonderful opportunities. The perfect job or perfect mate may take a little longer to get, but it will be well worth it.

7. Sometimes, you just need to take a deep breath and remind yourself of who you are and where you’re going – Perspective is everything. Let yourself have a break sometimes to remind yourself where you’re at–and where you’re still going.

8. Be fearlessly authentic – Don’t let anyone hold you back. Be yourself–unashamed, unafraid. There’s something beautiful in a person who can be who they are boldly and purely.

9. Happiness is the highest form of health – Add the prescription for happiness to your daily regimen. Whatever makes you happy, find a way to make it fit into your life.

10. Your value doesn’t decrease because someone else fails to see your worth – Your self-worth and value is defined by who you are as a person–your character traits, your wonderful personality, the things you are choosing to contribute to this world. It’s not based on what someone else sees or doesn’t see.

(thanks Alex Blackwell)

Penultimate EpisoDe: ED is in wED 

(c) 2015 Edward C Lunnon

8 years 7 months ill …

Physical: Advantage CBD / Mental: Advantage Ed

  

wEDnesday 22 April 2015

10h30

AlgoaFM: On Air 94 – 96 FM Eastern Cape South Africa) / Online http://www.algoafm.co.za (Worldwide)

ED is in wED with Lance du Plessis

After running for 5 years, thank you for joining us for our penultimate episode in which we raise awareness of corticalbasal degeneration and other life threatening illnesses …

Base Camp

(c) 2015 Edward C Lunnon

8 years 7 months ill …

Physical: Deuce / Mental: Advantage Ed 

  

I became aware that there was something wrong with my body in September 2006 – hence my timeline of 8 years and 7 months of being ill.

I was diagnosed with Corticalbasal degeneration in February 2007 – some 8 years ago.

Lance du Plessis and I commenced chatting on AlgoaFM, our local Eastern Cape radio station, in March 2010 – some 5 years ago.

During these five years, I have gone from being a very abled human being to being, at this stage, a partially disabled human being.

I have experienced the joy of life in all its glory – and maybe not always realised the blessing to be able to do so – and have experienced the joy of life from the perspective of someone who is not always in full control of his body.

It is difficult to see this illness gradually take away your body from you – just small bits at a time. This week I had to visit the neurologist to complete forms for my insurance company. They wanted to know whether i was getting better! it was startling to see just how much regression has taken place in these last few years. From top to toe, so much has been taken away. Yet, I have adapted and have learned to cope with less and (most of the time) have been able to do so quite effectively and happily.

With just a couple to go, we come to the end of our regular Wednesday morning chats on the radio, some 250 of them over the last five years. I realise that we have only just touched the tip of the iceberg. In this long journey, this battle with a degenerative brain disease, we have only just made it to base camp of the Mount Everest that I and my family have to climb.

It is here that we will have to rest a while, acclimatise and get ready for the real challenges that lie ahead. Yes, I will miss sharing my journey on air with the so many people, worldwide, who have taken the trouble each week to listen to Lance and I. I shall miss Lance who has climbed with me for the last five years. He has been my climbing partner and has kept me going all this while. 

However, I will still be available online as I face the steep cliffs that lie ahead. 

Yesterday, on our way to our monthly MNDSA support group meeting, we had to transfer a totally disabled person from wheelchair to car and vice versa and over again. I’m not sure how may of you have actually done that, but I realised yesterday just the challenges that go into that seemingly simple action for most able-bodied people. 

Yes, the cliffs get steeper and steeper …

But, I am told, the view gets better and better …

I look forward to sharing that view with you.

Thanks, again, for reading, for caring and for sharing. 

Ed is in wED with Tove

tove

Life is so Short … a transcript of our discussion today on AlgoaFM (pod to follow)

Life is short, and it is up to you to make it sweet. – Sarah Louise Delany

As I roll into my mid-50s, the urge to cherish every day grows stronger.

The things that once annoyed me now remind me that life is in motion. Over time, the challenges and setbacks give way to victory and contentment.

I’m realizing that even in my most anxious moments, there’s always an opportunity to see the blessings. But I have to choose to open my eyes. Learning to be happy with what I have is another lesson that’s finally soaking in.

It’s also becoming clear that I can’t get to the place where I want to be without letting go of the things that keep me stuck in a place fear and self-doubt.

And where is that place?

It’s a place of peace. It’s a place of knowing who I am and what makes me happy. It’s a place that tells me that life is short, so…

…tell the people you love how much you love them.

…share your heart. There’s no time to leave important words unspoken.

…be kind for no reason.

…eat cookies when you crave them.

…do what scares you. Take a chance – be bold.

…take a nap when you feel tired.

…don’t run from you past – learn from it.

…embrace getting older.

…ask for what you want – believe you are worthy to receive it.

…ignore what others think of you.

…don’t try to be perfect.

…love yourself completely.

…reconnect with old friendships

…seek new friendships.

…experience the world. Travel to the places that are calling you.

…find a job that is aligned with your passion. If you can’t, follow your passion anyway.

…focus on what’s important and let go of what doesn’t.

…if you see a chance, take it!

…give yourself permission to be happy.

…face what scares you.

…leave anger behind.

…laugh as much as you can.

…make peace with yourself.

…by inspired by your faith.

…let go of the people who will never love you back.

…forgive quickly.

…kiss slowly.

…smile at what delights you.

The trouble is you think you have time. – Buddha

Life is a one-time offer …use it well!

(with thanks to Alex at The Bridgemaker.com)

Don’t call me … I’ll call you

  

http://youtu.be/xERJ6TneF10

(C) 2015 Edward C Lunnon

8 years 7 months ill …

Physical: Deuce / Mental: Ed

ED is in wED for just three more weeks. Then, to quote the late Nelson Mandela, “I will be retiring from retirement”!

My weekly talks each Wednesday at 10h30 with Lance du Plessis on AlgoaFM will cease on 29 April, five years and 1 month after our first talk at the end of March 2010. I will have been interviewed 260 times.

The purpose of our initial discussion was to raise awareness about neurological illnesses. I retire in the knowledge that we have achieved that, but only too aware that it is but the first stepping stone in a lengthy pathway littered with many obstacles.

As long as my illness allows me, I will continue to write … And I hope that you and many others will continue to read!