Flying High on Jungle Juice

©2013 Edward C. Lunnon

Monday 12 August 2013: 6 years 11 months on …

Physical: Advantage CBD / Mental: Deuce

Since returning from Bloemfontein at the end of July, it’s been another hectic few weeks!

Firstly, I Discovered on my way to Bloem when I filled up the car that there was no money in my bank account!

I then Discovered that my disability benefit had not been paid into my account by my insurers! So, between my broker and me, it took many calls, emails etc. to get that sorted out. Stress and tension don’t do me any good, and not being paid one’s “salary” leads to all kinds of problems at the bank when your debit orders have to be paid! Thank goodness, I Discovered that just in time, and with some fast remedial work, I was able to minimize the damage. I’m still waiting to hear why it happened – it’s not the first time!

In between that I met with my bank broker, Kyle Jacobs, at the newly revamped South Ender pub in Walmer; Michael Halbert who helps me with my personal finances, Nelson Mandela Metropolitan University meeting to discuss Phillip’s academic future, Nadine van Westenbrugge to help with admin and the Ratepayers meeting to discuss how best to combat non-service delivery in the Metro. I have been diligently distributing protest letters in the neighbourhood!

I had drinks at the Pitch & Putter with Len van Kempen, lunch with Ben Roth and his father at Finezz, brunch with Annette Jones and Liz Findlay at La Boca and Kevin Paul’s farewell party at Finezz before he headed off to the International Swimming Championships in Canada, where he will be swimming this week.

At Bluewaters Café, there have been visits from radio listeners, the Coggers and the Serfonteins.

I have had my home visits from Gill, the Hospice nurse, and Isaac, my weekly chat buddy!

And then there’s a video which Adrian is filming about my life and which will be shown at Mpekweni Sun in September.  I am writing the script which also takes a lot of time!  

Meetings and calls were made to the Groenewalds in Humansdorp to arrange for Martin (injured in Bloemfontein) and his Dad Adriaan to appear on our radio show last week.

Julian Fletcher has been at the house on Fridays to massage my tired muscles and I have been to see Stuart Dicke twice on Mondays for some physiotherapy and Johnny Raath for some gym work. My weekly haircuts and beard trims are done by Grant at Front Cover in Newton Park (phone 041 363 2529).

Tuesday was the monthly Motor Neurone disease meeting at the Old Grey Club with Stuart Dicke as the guest speaker.

Then there have been a few blogs to write, and updating my blog and web sites with pictures and text!

On Thursday evening I attended Mandy Gurr’s benefit show, Gino Fabbri’s Just Laughter, at the Old Grey Club, with additional background singing by Mandy herself on a CD that I burned off the internet!

And then rugby, rugby, rugby … Phillip’s last school games against Framesby last week and Selborne College this last Friday (Women’s Day). The Boarding House Fundraiser Farmers’ Day was arranged at the same time to maximise profits.

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Phill’s team lost to Framesby last Saturday but beat Selborne this week. The First Team won both encounters – with Framesby being an exciting last ten minute charge to win the game and Selborne being a white wash victory for Grey! The Firsts are “flying high” at the moment having come to the end of the rugby season with an unbeaten record against Eastern Cape schools.

I was flying high on Friday, too; after having had a number of the “Jungle Juices” (orange juice and cane spirits) sold at the Farmers’ Market. I’m not too sure what the interactive effects are of my medication and the cane, but for a while there my body appeared to be working normally!

 It was really pleasant visiting under the wonderful red Bedouin tent which had been erected in the matric quad to keep us dry from the steady rain which fell on Thursday and Friday. After going home with Sean and Phillip in the late afternoon, I slept right through until Saturday morning!

Congratulations must be extended to Niekerk and Ingrid Ferreira, all the boarder parents and the boarders for having arranged such a vibey and, I hope, a profitable Market Day!

On Sunday, we had a quiet restful family lunch at the Chartroom of the Yacht Club in the Port Elizabeth harbour.

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Today is a blog write day, a visit from Iain Fyfe, ex-Grey teacher (Sean’s u15A rugby coach) visiting from Hong Kong where he has taught English for the last six years – he left just after I became ill and was happy to see me still in such “good” health, a visit to the physio and the gym and something more mundane like getting the roof repairers in to check on the leaks in the stoep roof!

This has been just another “quiet” week in my life – the week that was!

I need more Jungle Juice (and Carbolev and Lyrica) to keep me going!

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ED is in wED 7 Aug 2013: AlgoaFM Podcast

Listen here to the broadcast: wED 7 August 2013 with Martin Groenewald, the Grey PE 1st team player injured in Bloemfontein.

Click below:

Thanks for listening!

martin

Frankly I Don’t Give a Damn

©2013 Edward C. Lunnon

Tuesday 25 June 2013: 6 years 9 months on …

Physical: Deuce / Mental: Advantage ED

The month of June is International Motor Neurone Disease Awareness month and Friday 21 June – our winter solstice day – is also International MND Day.

The local branch of the MNDA of SA arranged an awareness breakfast on Saturday and on Friday the movie “I Am Breathing” was screened.

Ironically, I have NOT been breathing – at least not well!

Last weekend (15 June), feeling well, I spent time at the Patensie Citrus Festival. Friday night I visited Eppie and Lande Ferreira (with Matt Sexton, Kings coach, and his family) and I slept over at Pietie and Coba Ferreira (and braaied with them and ex Helshoogte boarder Corne Muller.)

Saturday morning, we did a tour of the Citrus packing sheds and then “did” the festival. Stalls, music, singers, beer tent, people from far and wide … I was humbled by how many people, even here in Patensie, recognise my voice from radio. It is a measure of how the message of neurological illnesses is being spread far and wide. I am most grateful to AlgoaFM for giving me the time each Wednesday for our programme “ED is in wED”!

I returned late afternoon to Port Elizabeth because we had a farewell dinner with the Stapletons – they have headed off to Thailand for the holidays!

Everything changed on Sunday morning – Father’s Day. I woke up with a cough and feeling grotty. For the first time in almost seven years since I have had CBD, I was also ill with something else!

I stayed in bed and wafted through the next few days being Father’s Day, Youth Day, Public holiday, long weekend, Monday, Tuesday … and whatever day it was. I am not quite sure anymore which was what!

I saw Dr Butters and he confirmed that I had bronchitis – the last thing that anyone with a degenerative neurological illness wants (bearing in mind that our chest muscles are affected, we breathe shallowly and we eventually die from lung complications and illness such as pneumonia.)

For the first time since I have had CBD (seven years now), I have been confined to bed (other than when I broke my elbow some five years ago.)

It’s been a test of my resolve and a wake-up call of what lies ahead.

Watching the movie – the story of Neil Platt’s fight with MND – also did me no good. But in between, I went to listen to Elvis Blue sing at Grey, saw the public screening of the movie and attended the breakfast on Saturday. Alan Solomons spoke about the Kings rugby franchise – beating the odds – and it reminded me so much of the fight that we have with MND. Mandy Gurr, a local ex-theatre personality and singer who has fought the illness for some 15 years now also spoke (with difficulty but with so much courage). She leads where we still have to go, and what an example of courage and determination she sets for us who battle with so many different kinds of illnesses that life throws at us.

“Raising awareness” is the term that we hear so often when we talk about illnesses of various kinds. Often the “raising awareness” goes hand in hand with “raising money” because most cases of battling illness go hand in hand with battling finances. Becoming sick becomes a financial battle as well! That’s often why we have these “awareness” days and functions.

But I have also come to realise that unless dread disease and severe illness hits us personally or our immediate family or close friends, then – quite frankly – we don’t give a damn!

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We don’t prepare for it, we don’t care for it and we simply ignore it and hide it away. We live our lives as if it will never hit us – others yes, but not us.

It’s only when it comes like that “thief in the night” that we are forced to pay it much attention.

Hence, my motto, for those who have the gift of good health – LIVE.LIFE!

Last night, I went to listen to Prof Cyril Karabus speak about his recent traumatic experience in the United Arab Emirates (Abu Dhabi). (He had been found guilty on “murder” charges in his absence as a result of a young patient of his having died from leukaemia ten years ago when he did a locum there. Now, he was detained when passing through the airport on his way back to SA from a family wedding in Canada.)

In a moment, his life, and that of his family, was changed by the course of life!

I’m starting to feel better. It’s time to LIVE.LIFE again!

 

JEEPers, this Baviaanskloof is Mooi!

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©2013 Edward C. Lunnon

Tuesday 7 May 2014: 6 years 8 months on …

Game ED

Some two weeks ago, the day before I went to Wynberg for the weekend, I received the following email from Mike Proctor-Sims via Lance du Plessis at AlgoaFM:

Hi Lance

Mike Holmes and I were fishing last weekend. Standing on a beach, rods in hand, with the fish not biting leads to lots of chatting and Mike came up with something you might be interested in. Holmes and I have a mutual friend who owns and manages the Baviaans Lodge, which straddles the Baviaans and Kouga mountains and various kloofs. Rob is an avid environmentalist and has built his lodge, which borders on the Baviaanskloof Wilderness Mega Reserve, using eco-friendly methods.

Mike was talking about this guy you have on your programme once a week who is suffering from an incurable disease and using his remaining time on earth to discover wonderful places, mainly in hte Eastern Cape. I have heard him on your show once or twice as well. Mike said the guy had mentioned that the Baviaanskloof was one such venue he would like to experience. I have spoken to Rob and he would be delighted to host him — you as well if you can get away.

The main feature is the natural beauty. Cycads, fynbos, indignous forests, streams, Bushman caves and really nice rustic accommodation to are the more sedate features while more challenging are river rafting and boating on the Koaga river and the 4X4 route that runs between his lodge and the main road through the Baviaanskloof, the dirt road joining Patensie and Willowmore.

There is a time factor involved if you are interested in a visit. The weather is good at the moment, neither too hot nor too cold but the cold is imminent.

I suggest you have a look at Rob’s two web sites www.baviaanslodge.co.za and www.baviaans-kouga4x4.com. There is no cell phone signal there but you can E-Mail him on rob@baviaanslodge.co.za and possibly organise a Skype conversation. If you do decide to make the trip both Mike Holmes and myself would be keen to possibly tag along to maybe do a magazine article.

Regards

Mike

This e-mail set in motion a sequence of events, further e-mails, SKYPE conversations, plans, “unplans”, replans and final plans that saw Sean and I set off for the Baviaanskloof on Saturday afternoon for an overnight stay at the Baviaans Lodge.

Unfortunately, to get all the parties involved to be able to co-ordinate diaries became a mission impossible.  Being a “pensioner”, I’m the easy one! Everyone else had “things” to do, but I am dependent on a driver and Sean was only available on Saturday afternoon after work.

My memory fails me often nowadays, and we actually left home twice! Firstly, after filling up with petrol, my petrol card had expired and couldn’t be used! I’d pay with the credit card then, only to find that my wallet wasn’t in the car. So then Sean paid and I’d refund him – we went back home to fetch the wallet – only to find it was under the car seat all along!

We had no sooner left Port Elizabeth along the N2 and I was telling Sean about a warning light that had gone on in the bus to Cape Town the previous week, when the self-same light came on in our Jeep Wrangler! So we stopped at Jefferys Bay and so did the warning light!

Then we went westwards along the Langkloof’s R62 to Kareedouw where we picked up two of Rob’s sons at the school hostel to take them with us to the Baviaans Lodge, our accommodation for the evening and their home.

We went back some two kilometres along the R62 to Assegaaibosch Station and then some 40 km north westwards to the Lodge. Despite only being 40km, the road winds up and down and round and round over the Kouga Mountains and River and so it took us about an hour and a half to get there at about 17h00.

Along the way, the view is stunning and the wow’s became Wows became WOWS! The final descent into the Valley of the Lodge is an OMG WOW WOW WOW!!

No words can do the area justice – hence the pictures attached to this blog should tell the story, and even then, they often don’t tell the full story.

We met Rob at the Lodge, then were shown to our cottage and after unpacking and freshening up, returned to the lodge for a chat, drinks and supper.

No electricity, no TV (to watch the Kings – TG we only heard the score the next day!) but only paraffin lamps, chatter, red wine and a meal fit for the Kings – onion soup, herbed chicken and malva pudding with hot custard made us ready to hit the sack and settle down under the duvets on a dark, quiet, chilly, crystal-clear evening up in the mountains.

The only light outside was the wispy white constellations of the Milky Way – gazillions of shimmering stars, suns, planets, galaxies, shooting stars, and all those other things of which I comprehend so little. It’s all too much for my little pea brain to understand – I don’t even try to understand – but I can and do appreciate the beauty and the Godliness of it all! I wonder sometimes when the time will come when I, too, will be glistening away somewhere up there …

That wasn’t the only flickering.

The little flames in our bedside lamps (real lamps!) and our eyelids flickered in unison. I think our eyelids closed as we blew out those lamps and before our heads hit the pillows! It put two meanings to the term “lights out”!

Sleeping in we did, because we could and, thankfully, had it not been for the crows knocking on the roof that woke us up, we would have been more than just the slightly late that we were for our pre-arranged 9 o’clock breakfast time!

Cereal, juice, yoghurt and eggs, bacon, beans, tomatoes and fritters rounded off with hot homemade buns and filter coffee were set before us and almost sent me back to bed for more sleep!

But we had a trip to do. From the Lodge, a 4×4 entry route northwards into the Baviaans Kloof proper (which runs 120km from Willowmore in the west to Patensie in the east) provides 32 kilometres of unrivalled scenery.  We must have covered some half that distance: up and down and over and round and down and up and then, unfortunately, because of the time constraints, a u-turn and did it all again in reverse back to the Lodge! The Jeep did us proud.

This is a unique, wilderness area right on our doorstep. Each twist and turn in the road would reveal different vegetation, depending on whether it was on the windward or the leeward side of the rugged mountains. Grassy plains next to fynbos, winding rivers and streams, cycads and red and white proteas and other members of this unique plant species, geographical features, spectacular kloofs and bird life had us constantly grabbing for our cell phone cameras to take just another pic!

From the highest spot that we went to, we could see St Francis Bay away to the east and the Outeniqua Mountains at George away to the west. In between, luscious green valleys are interspersed by flat-topped plateaus and soaring blue mountain peaks.

Rob, our host, cook and guide, told us snippets about the history, the geology, the fauna, the flora, the endangered species, the secrets, the inhabitants, the rock art, the caves and the rock overhangs.

There is obviously far too much to talk about and to see and to do, and too little time to do it in!

So it was with a heavy heart that Sean and I left at two (with the kids piled in the back to return to school). But we will be back, I hope, to savour some more of this pristine, remote nature lovers’ paradise.

 Our thanks are extended to Mike Proctor-Sims and Mike Holmes for conceiving the idea and to Rob le Roux and his family for hosting us and for their warm hospitality. It was a truly unforgettable experience.

  

For the Last Time

ED is in the week EnDing wED 24 April 2013

  • Wed 17: Happy Lands Addo Women’s Institute meeting and AlgoaFM broadcast / Maggie Thatcher’s funeral / Fathers’ Rugby meeting at Grey
  • Thu 18: Visit Isaac / Lunch Gavin / Haircut / Blast in West, Texas
  • Fri 19: Visit Ben, Jenny / Lunch Andrew / Host boys from Paul Roos / Watched CNN – Boston
  • Sat 20: Rugby vs Paul Roos at Grey / Kings vs Bulls at NMB Stadium / Power Boat Club
  • Sun 21: Relax and Sleep and London Marathon!
  • Mon 22: Sean’s car at TAVCOR / Phil’s SU application forms / Arrange trip to Wynberg and HH Reunion
  • Tue 23: Willie Bosch/Brian Bezuidenhout: APDStellenbosch

FOR THE LAST TIME

©2013 Edward C. Lunnon

Tuesday 23 April 2013: 6 years 7 months on …

GAME ED

Sean left school at the end of 2010. I had set it as one of my goals to see him get into matric and to leave school.

That was because I had been told in February 2007 that I would be “severely incapacitated” by 2010 (three years!) and dead by 2012 (five years!).

Well, now it’s 2013 and Phillip is in matric and I’m not dead and neither am I severely incapacitated! I am grateful for this extra time.

I haven’t even set myself a goal of seeing Phil getting to the end of his school career! I have just assumed that I will still be here. I just don’t know anymore!

But, what I do know is that everything we do with Phil at school this year is “for the last time”. The chicks are slowly leaving the nest, and by next year, we will no longer have children at school. That chapter will be closed.

It was the last encounter with Paul Roos Gymnasium from Stellenbosch this past Saturday. (I did my practice teaching at Paul Roos way back in 1979.)

This Saturday is our last encounter against Wynberg in Cape Town, and I hope to go down to the Western Cape for that. Then there’s Bloemfontein later this year and NO I’m not organising any trains for parents to Bloemfontein! I did one in 2007 and one in 2009 and they were the best, coldest, latest, drunken trips to Bloem that I have ever done. Luckily, I don’t think the SA Railways even has spare coaches any more, and I’m not even going to try to find out if they know where their rolling stock is!

But as one door closes, the next one opens. So today I had to fill in some forms for Phillip’s application to Stellenbosch University next year. He wants to do mechanical engineering at my Alma Mater.

It was a scene of déja vu. I could see myself filling in my own university application forms 40 years ago! The difference is that we physically filled in paper forms and made bank deposits – now it’s all “online” and EFT transfers!

We’ll keep our fingers crossed that his application will be successful. And he wants to stay in Helshoogte Residence – she was my very happy home for 6 years. And I was her primarius in 1981.

And while I’m filling in Phil’s application forms on the one side, I am also busy filling in my forms to attend Helshoogte’s fortieth birthday party next month.

Even though it clashes with the reunion in May of my last matric class that I taught at Grey, I certainly won’t miss “Heaven is a place on Earth” – Stellenbosch, my birthplace and place of my education. Born and bred in Matieland!

So I’m trying to juggle times and planes and lifts and accommodation to maximise my attendance at both reunion functions on that second weekend in May. Of all the 52 weeks of the year, why, oh, why are these two reunions on the same weekend? Life can not just be simple, can it? Not even with good old customer service.

Not for the last time, I hope, I headed off to Tavcor Motors this afternoon. Last year, I had some bad service from them with Sean’s car and often businesses mess up even more when they go into recovery mode. Not them!

They have made it up to me in leaps and bounds. I can only thank and congratulate Garrick and his two PA’s, Elaine and Yolande, for the most unbelievable excellent service – way beyond the call of duty – that they have given to me with the repairing of Sean’s Polo that was damaged in the hailstorm outside Graaff-Reinet two months ago. If this is the type of service that they offer then I can only recommend them in future.

And not for the last time have we witnessed the things that we have seen this past week: bombings at Boston; explosions at West, Texas; earthquakes in China; floods in the Eastern Cape …

I will write more later.