I Remember … (1)

7 years 7 months ill …

Physical: Advantage CBD / Mental Deuce

I remember …

The Motor Neurone Disease Association of SA meeting at Old Grey Club.

We had a very touching and different meeting. Kasturi Pillay and her children came down to PE from Durban. Her matriculant daughter gave a talk on “Living with dad and MND.” Kasturi spoke afterwards and shared much insight on her journey and her young husband’s acceptance of his condition, and what he taught them as he journeyed with MND until his death at age 44.

I remember …

Being doubled booked for therapy on Wednesday and getting a free session on Thursday, and forgetting to go for my weekly beard trim at Grant’s …

I remember …

Watching Grey play rugby against Michaelhouse, narrowly winning by 10 – 7,  getting caught up in the beer tent and just beating the rain downpour on the way home

I remember …

pig

Heading off to the Bathurst Agricultural Show, staying at the Settlers Cottage circa 1821, eating at the Pig and Whistle, the Earthen, Lara’s Eatery, the Bathurst Arms, the nurseries, craft shops, and thanks to Tanya for the hospitality. It was great meeting up with so many familiar faces again!

I  must remember …

The ABC, A Bathurst Country Affair is to follow in August over the Women’s Day weekend. More fun to come!

I remember …

As a kid, 6 April, a public holiday, was celebrated as Van Riebeeck Day – the day that Europeans under the leadership of Jan van Riebeeck from Holland first came to settle at the southern point of Africa. Bringing Christendom to Africa, some would say, and the beginning of our problems, others would say …

I remember …

Rushing home for the 10th Iron Man from Barry’s house at Villas Marinas on Marine Drive. I watched the first one back in 2005 when I was still well … how things have changed since then. And it got quite cool in the evening – watch the video:

I remember …

Oscar Pistorius taking the witness stand in his murder trial in Pretoria and  Shrien Diwani arriving at the  Cape Town High Court after fghting extradition in London for three and a half years now. I was in London in November 2010 when his wife was killed in Cape Town and the British press made South Africa look like a banana republic because of the murder!

shrien

I remember …

The Australians detecting the pings from the black boxes of the mystery disappearing Malaysia flight 370

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I Put it to You …

Tuesday 18 March 2014

7 years 6 months on …

Advantage CBD

The stories are happening at an alarming rate. World news that is, and with the benefit of modern technology, it all unfolds right in front of you in your living room.

One needs lots of time to follow it all. And I have lots of time. As the CBD progresses, I am spending more and more time at home. The TV and the internet has become my window on the world.

Its been civil war in Syria, the take-over of Crimea by Russia, the disappearance of the Malayan Boeing 777  and the Oscar Pistorius murder trial. Theories and more theories abound.

But another story for us is the ongoing fight with our medical aid. It’s not a unique fight.

Because of a change in Pera’s employment status, we have moved from one medical aid to another. Despite assurances that my medication would be covered, we have now for two months being fighting to get my Carbilev and my Lyrica tablets paid for by the medical aid. These meds are my life-savers and after seven years, we have got the dosage, timing and frequency down to a fine art. Now the new medical aid says NO, we won’t pay for those, you need to take generics.

We haven’t even got to the physio, bio, massaging, exercising etc etc yet!

The fact that degenerative brain diseases are not included as PMB’s (Prescribed minimum benefit illnesses) does not help at all.

So I put it to you, those of us with these illnesses are being discriminated against, and so we have another fight on our hands.

It’s easy dealing with CBD. It’s hard dealing with beaurocracy.