That’s What Friends Are For

In good times
In bad times

Just more than two years ago, in April 2012, I excitedly wrote about the desire of a few people to start a support group for MND patients in the Eastern Cape.

After a baptism of fire, the group had its first meeting at the Old Grey Club. I also wrote excitedly about my role of involvement in the establishment of that group and securing the venue for its meetings.

It was the birth of the Eastern Province Branch of the Motor Neurone Disease Association of South Africa. Sr Gaynor Bishop was contracted by the MNDA to assist with the caring of local MND patients.

It is unfortunate that this relationship has now been terminated, and that Sr Gaynor and her ex-husband (as vice chairman and chairman respectively) have now formally announced the existence of “The Friends of Motor Neurone Disease”, a group that has operated quietly for more than a year now. My understanding is that this association has been created in order to ensure that funds generated in the Eastern Cape remains with local patients.

I’m convinced that discussions in this regard could have provided a better solution to this problem, if it did exist. We are heading to a position where we have almost as many fundraisers for MND in PE as we have patients! The cake, shared with so many other charities, can hardly be big enough.

It is ironic that the ice bucket challenge, which was supposed to assist the cause, has precipitated this chain of events. Hopefully, in the long run, it will not detract from the welfare of our MND patients. They suffer enough and do not need to become the football in the friendly game.

It reminds me of so many of our sporting codes where administrators bicker whilst the players just want to play the game!

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What’s on your MiND?

7 years 11 months ill with a degenerative neurological illness CBD …

Last night, Mother Nature emptied her buckets of ice and snow and water over Port Elizabeth and the Eastern Cape, answering the call to the Ice bucket challenge.

So now, this morning, part 2 of the challenge remains. To whom or what should a donation be made?

The question, of course, is “Why would you want to donate anything?”

Is it because you want to be philanthropic and donate money towards research to eradicate these scourge diseases?

I am yet to be informed that there is any recognized brain research being done in South Africa. Until that happens, I am of the opinion that NO research is being conducted. So why give your money to nobody?

Is it because you want to make my life and that of my fellow twenty-odd ill compatriots a little easier?

So who cares for us? Who makes our lives easier and more comfortable?

Who provides us with the arms and legs and lungs and tongue that we lose?

Who provides the hugs, the care, the love, the psychological assistance, the 24 hour assistance, the medication, the physio- and speech therapy, the crutches, the wheel chairs, the breathing apparatus and all the other apparatus that we need to enable us to live a somewhat dignified life – a life that we, as healthy people, take so,for granted?

In the first instance, we are dependent on our families.

In the second instance, they depend on organizations such as the Hospice Organisation (the St Francis Hospice of Port Elizabeth, in particular) and the Motor Neurone Disease Association of South Africa.

These organizations, who do sterling work, are dependent on public ( that’s your!) assistance.

So, if that’s on your MiND today, go to http://www.hospice-PE.co.za or http://www.mnda.org.za and make your donation there! All the details are there to make it easy for you. No more worries for you!

We thank you for caring and sharing.

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ED is in week EnDing Tuesday 25 September 2012

6 years on … Advantage CBD

  • Mon 17: Been a very slow weekend; breakfast with Rory Duncan
  • Tue 18: My 56th birthday; hospice visit; coffee with Kevin Paul; massage; visit by Sumene, Rob, Wendy and Lesley
  • Wed 19: AlgoaFM; Death of Peter-John Seach (Class of 88); Meeting with Loines, Kobus, Yvonne at Bluewaters cafe to discuss Walk in the Parks in Jan 2013
  • Thu 20: Visit by Nadene; worked on book for rest of day
  • Fri 21: Visit by Isaac; Lunch at Old Grey Club with Sean
  • Sat 22: Gym; To the Pointe (dance show) at Opera House
  • Sun 23: To St Francis Bay to visit Charles and Julie Nortje for long weekend; braaied; saw flood damage in Santareme
  • Mon 24: Heritage Day; return to PE; Stapes’s anniversary at Bridge St Brewery (postponed); gym
  • Tue 25: Visit by Janice from Hospice; walk on golf course; new cell phone; massage by Rob

 

ED is in week EnDing Tuesday 18 September 2012

 

6 years on … Deuce

  • Mon 10: Admin work – income tax!; London Parade
  • Tue 11: Sept 11 – 11 years on; Visit Hospice Sister; Massage; Visit Isaac; Walk on golf course; Kevin Paul returns from London
  • Wed 12: AlgoaFM with Gaby van Rooyen; Coffee at Bluewaters with Van Rooyens and Loines; To Port Alfred Lionel Hunt; supper at Guidos
  • Thu 13: Breakfast at Wimpy; return to PE; meeting with Robert; Grey Way concert; Dad’s birthday
  • Fri 14: Breakfast meeting with Kobus; Humewood Golf course; Supper and reunion with The Scholtz’s (including Lindsay and Jess)
  • Sat 15: Breakfast at Mugg with Seve; Springboks lose to All Blacks; work on blogs; flood at Santareme in St Francis
  • Sun 16: Lunch at Jutland Crescent
  • Mon 17: Been a very slow weekend; breakfast with Rory Duncan
  • Tue 18: My 56th birthday; hospice visit; coffee with Kevin Paul; massage; visit by Sumene, Rob, Wendy and Lesley

ED is in week EnDing Tuesday 11 September 2012

6 years on … Deuce

  • Mon 3: Visit by nurse; Massage
  • Tues 4: Motorneurone disease association meeting; new tyres fitted to car; walk; supper at CTFM with Botha’s; Dallas!
  • Wed 5: AlgoaFM; Met with Tommo re Soiree; Ingrid’s birthday visit
  • Thu 6: Visit to Nadine; Holy Communion with Billy Lindoor; Haircut; Jonathan Jansen meeting at Grey; govt lifts Fracking moratorium
  • Fri 7: Coffee with Annette and Liz; Rehearsal at Grey; Staff Soirée at Grey
  • Sat 8: Springboks lose to Aus; Watched Kevin Paul in Paralympics (silver);  Soirée till 3am Sun!
  • Sun 9: Braai at the Biggs ; closing ceremony of Paralympics
  • Mon 10: Admin work – income tax!; London Parade
  • Tue 11: Sept 11 – 11 years on; Visit Hospice Sister; Massage; Visit Isaac; Walk on golf course; Kevin Paul returns from London

ED is in week EnDing Tuesday 4 September 2012

6 years on … Deuce

  • Mon 27: Admin
  • Tue 28: Visit Sr Gill from Hospice; Dallas after thirty years!
  • Wed 29: AlgoaFM; Gym; Sean and I supper at John Dory’s
  • Thurs 30: Helped with Nadine’s computer; Visit by Isaac; Massage by Julian; Supper with Kathy Volschenk (nee Harris) – my cousin whom I haven’t seen since 1970
  • Fri 31: To Graaff- Reinet
  • Sat 1 September: Visit John and Jean Watermeyer in Aberdeen; Gordon Wright’s 40th in GR; photoshoot for Cancer Campaign
  • Sun 2: Back to PE; watched Joost on TV
  • Mon 3: Visit by nurse; Massage
  • Tues 4: Motorneurone disease association meeting; new tyres fitted to car; walk; supper at CTFM with Botha’s; Dallas!

 

Motor Neurone Disease Association of SA (MNDA of SA)

I am so very pleased to announce the very first meeting in Port Elizabeth in order to establish an Eastern Cape Branch of the South African Association of

Motor Neurone Disease / Amyotrophic Lateral Sclerosis (and related illnesses)

Date:   Tuesday 5 June 2012

Time: 10h30 – 11h30

Place: Old Grey Club Lennox Street Port Elizabeth (opposite Mt Road Police Station)

Enquiries: Sr Gaynor Bishop (Professional Nurse & Counsellor)                           Cell no: 079 591 2148

Please pass this notice on to anyone who may be interested in attending.