The New World (Day 1)

(c) 2015 Edward C Lunnon / 8 years 9 months ill … / Physical: Deuce – Mental: Deuce

Monday 15 June

 
I spent most of Sunday night up and about – an upset tummy is not what you want on the night before your departure! All yesterday’s lovely steak gone and all my pills gone!

Not a good start on our way to the Northern Hemisphere!

Anyway, feeling a bit jaded as we do the last minute packing and head off to the PE Airport at noon – Phillip at the wheel and Sean to join us at the airport.

More later  …

The Merry Month of May

(c) 2015 Edward C Lunnon

8 years 8 months ill …

Physical: Advantage CBD / Mental: Advantage CBD

  

Our radio programme ED is in wED came to an end at the end of April. I shall miss it and the large number of people that I have met through it. I am grateful for all the messages that I received and am humbled by the many lives that we have touched. Again. my grateful appreciation is extended to AlgoaFM and Lance du Plessis for 5 years and 260 interviews, and to all the listeners worldwide who tuned in every  week.

In the meantime, I have been learning to cope with more pain (not always succesfully!) and have had to see the neurologist, the doctor, the physiotherapist and the pharmacist at varying intervals.

I am not in a good space at the moment.

I have had to cancel a few trips ( to Cape Town and the Karoo) and find the days are becoming longer and longer and more difficult to manage.

At the same time, there are exciting projects in the pipeline and I am ever grateful to all of you who keep me in the loop. As soon as I feel  better, we wil tackle those exciting ideas! 

Watch this space!

I have not written much, but the world remains an unhappy ball(s up). Volcanoes in South America and earthquakes in Nepal have resulted in thousands of deaths and injuries, elections in Britain and in South Africa have left some in and some out, defacing of statues and other historical places in South Africa leave some feeling happy and others feeling dejected, murders and xenephobic attacks at home have some calling for the death sentence and others wanting to emigrate.

The world has become a moving mass of mankind looking for a better place to live. Ironically, it was the colonialists who established the colonies in the centuries gone by. Now, it’s those who were colonised who return to the colonialists searching for that elusive sunshine. We see it here at home, in Asia, Australia, the Americas and around the Mediterranean Sea. 

We live in an unhappy world and many of our lives are unhappy. It is left to us to manage ourselves and our surroundings.

We, too, will be moving soon and as i write we still await our Canadian visas. What usually takes ten days has now taken more than a month. I am told the Canadian embasssy is inundated with applications from South Africans who are wanting to emigrate!

I have been watching My Last Summer on Tuesday evenings on BBC Knowledge network. It tells of the last days of people who have various life-limiting illnesses. It’s worth a watch and reminds me that I am not alone in this world. My experiences are yours, too and my frustrations are shared with so many others. My thoughts are with so many of our friends who also battle illness on a daily basis.

If you have good health, treasure that gift and thank God!

See you soon …

  

Sleep in Heavenly Peace

(C) 2014 Edward C Lunnon
8 years 4 months ill …
Physical: Advantage CBD / Mental: Deuce

IMG_3778.JPG

IMG_3952.JPG

I started blogging some four years ago, primarily in order to reduce my workload in answering individual notes to me enquiring about my health and what I was doing to occupy my time.

It also became a vehicle to raise awareness about my illness, corticalbasal degeneration.

Little did I know then the amount of work that I was creating for myself!

But I am so grateful for the opportunities that have arisen from my writing, the friends that I have encountered, the new acquaintances that have been made, the speeches that I have delivered, the radio ramblings that Lance and I have been involved in and the awareness that has been created.

I am humbled that as we go into 2015, this blogsite is heading towards 200 000 hits.

Yet, as the figure goes up, I am also too aware of how much lonelier the path I walk becomes.

I was originally told, way back in 2007, that I would most probably depart this earth round and about 2012!

The interim years remind me of the frenetic pace that accompanies the preparation for undertaking international travel. And I have been extremely fortunate in doing so much of that!

In terms of travel, it’s the tickets, the passports, the visas, the currency, the bookings, the packing., and so on! Everything has to be just in place with no room for error.

In terms of facing death, it’s the policies, the insurance, the bank, the will, the house, the legal stuff, the funeral, the doctors, the family, the finances, the personal matters of the heart and soul, and so on! Everything, too, has to be just in place.

And, you know the feeling, when you arrive at the airport, rush through the check-in counter, then through passport control and into the waiting area of the departure and transit lounges. You sink into a chair, your luggage has been taken from you, a weight is lifted from your shoulders, not a care in the world, you hope like hell that everything has been taken care of, and if not, so what?

You watch, and wager and wait. Watch the crowds mill past, watch the wares on display in the various stores, wager your last few coins of local currency, and wait for your flight to be called.

You can’t go back from whence you have come and you can only think about the place you are going to!

If you are traveling alone, it’s a long and lonely wait. Despite being surrounded by a crowd of milling people, you are there by yourself and it becomes a lengthy wait!

And I have been waiting now for eight years and four months. The eight years have been a breeze that I have been blessed to experience.

My blogs document much of this period of my life. Thank you for allowing me to share this time with you.

The last four months have been increasingly more difficult. I am trying as much as possible to continue sharing these days with you, too. Unfortunately, my thoughts don’t always make it to my fingers and my fingers don’t make it to the keys! But thank you, too, for the words of encouragement and the acts of support in assisting me to share my time with you.

This is my ninth Christmas in the transit lounge. My body is growing tired of waiting, and I hope you will understand when I say that I am increasingly looking forward to that time when , at last, my flight will be called. My destination becomes increasingly more attractive. I long for the waiting to be over.

My wish to all of you this Christmas time – before you get to the transit lounge – is that you may discover your route in this life and know where your destination is, that you will continue to enjoy the trip and make the most of the hours given to you, and that you will sleep in Heavenly Peace.

“We regret to announce that Flight 777 to Heaven has been delayed yet again. We apologize for any inconvenience that this may have caused.”

Ed Lunnon is a Happy Traveller

Wednesday 16 February 2011: 4 years 5 months on …

Ed Lunnon is a happy traveller.

On Thursday 8 February 2007 he was in Cape Town, South Africa, but this time on a very different journey.

 At 9h00 he walked into the neurologist’s office and when he walked out, it was the beginning of a trip unlike any other he had previously undertaken.

 After five months of medical tests, a degenerative neurological disease called corticalbasal degeneration had been diagnosed. This illness would progressively melt down his body until he would become severely incapacitated.

He was told to return to his home in Port Elizabeth and to enjoy the next three years of quality life remaining.

 His personal diary documenting that poignant final journey was shared with his friends and family initially by e-mail and later through Facebook. By popular request, his private thoughts became public domain through a blog site, BrainStorms, and a weekly radio programme, ED is in wED, with presenter Lance du Plessis of AlgoaFM. The natural progression was to this website, Live.Life.

 These activities, and the public support in reaction to them, has sustained and encouraged Ed along the difficult steps of that journey of saying farewell to a beloved world in which he has so enjoyed travelling.

Hopefully, the time you spend travelling through this website and blogsite, accompanying Ed on his final journey, will encourage you to Live.Life each and every day, and to remind you to embrace the delicate, transient moments of our lives.

After all, our lives and the people that we share our moments with – our family, friends and even ourselves – are but fleeting joys.

 But we never lose the time we spend enjoying them. It is time that assists us to conquer our fears of our final earthly trip – of facing death and leaving behind those whom we have loved and with whom we have shared that time.

“And if we can conquer our fears, we can conquer anything.”

  

Be an ACE …


Live and leave      A  bundantly
Laugh                    C  ontinuously
Love                     E  ndlessly
__________________________________

To succeed in Life, you need a Wishbone, a Backbone and a Funnybone